Monica Meyer

Autism, Intellectual Disabilities, Syngap1 and Whole Life Community Living for Adults, Assistive Technology

Adult Autism: Community Life
360-904-8938
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Advocacy, Activism, & Resources for Autism

With over 25 years of experience in autism activism, genetics, education, and advocacy, Monica transforms her expertise into evidence-based, practical resources for parents, direct support providers, and healthcare professionals. Explore how her proven insights can make a difference today.

Welcome to my consulting services, where years of diverse experience and deep insights come together to meet your unique needs. With a lifetime of expertise, I provide tailored consulting for employers hiring or considering hiring individuals with neurodiversity or intellectual disabilities, as well as job coaches who support them. My services include specialized training focused on creating a more inclusive workplace and improving both employee and customer service through Universal Design for Learning principles.

As the parent of an adult with autism and an intellectual disability, I also offer valuable personal experience and knowledge to families and guardians. I am here to support you with resources and guidance as you navigate the service system and plan for the future. Together, we can create more inclusive, supportive environments for all.

Monica Meyer, Autism Activist, Keynote Speaker, Mother to Adult Son, Michael

Since the birth of her son, Monica has devoted herself to developing effective strategies that connect Michael with community resources, ensuring he leads a fulfilling life. Through her speaking engagements, training sessions, and collaborative meetings, she shares her invaluable insights and expertise. This ongoing commitment is a cornerstone of Michael’s health and well-being, reflecting a lifetime of dedication and experience.

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Comprehensive Life and Community Living Consultant

Monica’s journey began with a strong passion for supporting adults with ASD and advocating for their full integration into the community. Today, she offers practical, evidence-based resources to parents and care professionals, using her extensive experience to help individuals with ASD lead fulfilling lives.

Monica’s credibility is rooted in her personal experience raising her autistic child into adulthood, providing her with firsthand knowledge of identifying and developing key community resources. Her training sessions offer practical, targeted strategies designed to help parents and professional caregivers effectively support their adult autistic children.

Monica recognized that community involvement was key to her son’s happiness and fulfillment. This realization drove her to create strategies for helping autistic adults integrate into their communities, with an emphasis on enhancing communication, independence, and decision-making skills. She understands that this is a gradual process, one that takes time and patience to achieve.

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What’s new with Michael?

It’s been a heavy few days—full of grief, reflection, and the kind of emotional weight that lingers.

I recently learned that Mark, a man with Down Syndrome who had been a part of my sister’s life since childhood, passed away. Mark’s sister Mary lovingly took over his care after their parents passed. His health had been declining for a bit but even knowing that didn’t soften the blow. His death hit me especially hard—perhaps because I, too, am the parent of an adult son with autism and an intellectual disability.

Over the past couple of years, my daughter Mollie and I have been navigating some very difficult conversations about the future—about what happens when I’m no longer here. These are not easy discussions. They’re emotional, exhausting, and sometimes paralyzing. I’ve told myself that at 65, I still have time—that my health and energy are still with me. But this week shattered that illusion.

A dear friend of mine, someone I admired deeply for her resilience and strength, passed away suddenly. She was just shy of her 60th birthday. A massive stroke took her life in an instant. She was a proud mother of two, a doting grandmother of three, a creative spirit, and a force of nature who refused to be defined by her battle with Multiple Sclerosis. Despite the setbacks MS brought her, she filled her good days with joy, projects, and purpose. And in our friendship, we always picked up right where we left off, no matter how long it had been.

Her passing was a shock. It jolted me into a painful awareness that life can change—end—without warning. And with that came a renewed urgency. I’m suddenly more aware of how fragile my role is in Michael’s life, how much he depends on me, and how difficult it is to plan for the unknown.

Michael’s medical journey has never been simple. His seizure disorder is intractable and dangerous. He’s suffered broken bones, concussions, and now faces an even more serious challenge: a Chiari Malformation Type 1. Neurosurgery is scheduled for late August. As his mom, it breaks me to think about what he’ll endure. How do I explain to him that we’re returning to a hospital—an environment he associates with pain and fear—for a surgery that will likely leave him with the worst headache of his life? If I could trade places with him, take on that pain myself, I would without hesitation.

And yet, I remain cautiously hopeful. If this procedure brings him relief—fewer headaches, fewer drop seizures, and more stability—it will be worth every ounce of anxiety I feel now.

Last night, on our usual Thursday night outing, I found myself holding back tears. That crushing sense of sorrow came over me—wanting nothing more than to shield him from all of it. And still, we carry on. Together.

To all the parents out there—especially those raising children or adults with medically complex conditions—I see you. I feel your fear, your fatigue, your fierce love. And I want you to know that you’re not alone.

May you find peace in your day, even just a moment of it. And may you know that your strength, though it may feel invisible, is profound.

—Monica

Monica Meyer

Monica is a passionate advocate for individuals with autism, intellectual disabilities, and Syngap1, supporting them throughout their lives. She strongly believes in their right to full community participation, emphasizing that everyone should be able to contribute in ways that align with their own comfort and abilities.

 

More about Monica»

Monica’s Continued Journey

Monica has supported Michael from infancy to adulthood, navigating the challenges of accessing “appropriate” services from state human services programs and healthcare professionals early on. Over the past 25 years, she has dedicated herself to developing effective support systems and strategies to integrate Michael into the community, prioritizing his happiness and well-being. Monica’s primary goal is to share these resources with other parents and guardians, helping them spend less time searching for solutions and more time focusing on what truly matters.

More about our story »

Monica’s Resources

Monica turned her personal and professional experiences into useful, practical resources for parents and professional care staff.

In addition to her experience raising her son Michael, professional affiliations include appointment by the Governor of Washington to the State Autism Task Force.

Monica Meyer Consulting offers training, consultation, and a wide range of evidence-based ASD resources and strategies to support parents and care professionals.

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Blog

Reflections from the Roller Coaster: Michael’s Journey and a Message to Fellow Parents

In just a couple of weeks, Michael will finally meet with his neurosurgeon to discuss treatment for his Acquired Chiari Malformation Type I—a diagnosis we received over a year ago. That journey, like so many others we’ve walked together, has been anything but simple. It all began with a seizure. ... Read More »

A Heavy Heart for the Future of Our Children: A Call to Embrace Neurodiversity

I wish I were a better writer, able to fully capture the deep sorrow and dismay I feel over the current administration and the recent remarks of RFK, Jr. regarding the creation of an autism registry. For decades, I have worked tirelessly, advocating for greater access to diagnosticians in Washington ... Read More »

Navigating a Lifetime of Diagnoses: The Side Effects of Anti-Seizure Medication

Wrapping my head around the continued process of one diagnosis after another in Michael’s lifetime has been more than a journey less traveled; it’s been a marathon of emotional highs and lows. Michael, my son, is now 40 years old. His life has been a testament to resilience, navigating through the ... Read More »

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